Sierra and I have been getting our hands dirty this weekend in an attempt to make hand printed t-shirts that we can give out as gifts for Sierra's Angels giving us a 'helping hand' towards the next focus... getting Sierra's hands functional to enable her to drive a motorised wheelchair.
www.childreninmotion.co.uk who has worked with Sierra since she was 5-6 months of age and is by far the best physiotherapist we've found for Sierra's complex needs. In addition I have now confirmed Tereza Honcu to work with Sierra in advance of, and Anna Dobisova to work side by side with Anel during the week of September 28th - Oct 2nd to loosen her upper body up and provide additional support. Sierra is now at an age and body weight that I cannot do an OS trip alone. Previously I have flown a carer from Australia to help. Tereza http://www.caballinus.cz/fotogalerie-akce is an excellent physiotherapist from Prague who has also supported Sierra from the first few months of her life and Anna is one of Tereza's peers. This time I am flying the two girls for one week each to support us. The care, physiotherapy and return flights are less than it costs to fly someone from here! I am so happy with the way all the pieces of the jigsaw are coming together, mostly because I know these therapists really connect with Sierra, and I feel confident it will make a significant impact to her function.
The next thing to secure is accommodation...
Any 'helping hand' that you can offer will be appreciated, any amount makes a big difference. Karen, Shane and Sierra x